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Bad Brains frontman H.R. diagnosed with rare neurobiological disorder

on March 16, 2016, 9:35am

Bad Brains frontman Paul “H.R.” Hudson has been diagnosed with a rare neurobiological disorder called SUNCT, which causes him to suffer from extreme headaches.

Hudson’s wife Lori has launched a GoFundMe page to help pay for his medical bills. The goal is to raise $30,000, which will help cover a trip to a headache center not covered by insurance.

In an accompanying note, Lori discussed her husband’s condition:

“The headaches have gotten progressively worse; in November, he began living with almost constant pain. He has been diagnosed with a rare type of headache called SUNCT, a trigeminal neuralgia that is similar to cluster headaches. There is no known cure and no reliable medical treatment. To give you an idea of what he’s dealing with, cluster headaches are nicknamed ‘Suicide Syndrome.’ The headaches come randomly, with no warning, at all hours of the day and night; but for him, they are much worse at night. The intensity of the nighttime headaches is so great that he yells, cries out, groans, and sobs — repeatedly, every few minutes, for most of the night. He can’t work. He has no quality of life. If you call him and ask how he is, he will say, ‘Everything’s okay,’ because that’s just how he is. But everything is not okay.

“In the past six months, he’s been to the emergency room twice, had an overnight in the hospital, has seen two neurologists, and so far he has a diagnosis and found a pain medication that worked well for a while but is not safe to take long-term — so it’s two steps forward, three steps back. He has an appointment in early May at a Headache Center — not fully covered by health insurance — where we hope to find someone with experience with this type of headache. He’s on a cocktail of pharmaceuticals that scares me. He has lost weight, with visible muscle wasting.”

Hudson’s Bad Brains bandmate, guitarist Gary “Dr. Know” Miller, is recovering from his own serious health issues. Miller suffered a heart attack last November, causing him to briefly go on life support. According to Lori, Miller’s condition has improved, but he is still in rehab. A separate crowdfunding page has been set up to help pay for Miller’s medical bills.